Resources for Family Caregivers

Published In Caregiver Support

The following list of organizations and companies is provided for informational purposes only. This directory is not comprehensive, but it does include some excellent resources to help you jumpstart your research. While visiting these websites, be aware that some are reputable government sites; others are commercial businesses that may request you fill out a form to get more information or to talk to a representative; others contain sponsored content to cater to advertisers; and still others may sell personal information to advertisers.* So, please exercise caution about what personal information you give out.

How to Find a Caregiver
Help with Talking to Parents: Questionnaire to Identify Areas of Need
Task Management (Communication, Coordination, Organization)
Medical Records Information and Storage
Housing—Care Settings—Transitions Between Care Settings
Help with Paying Bills, Health Costs, Long-Term Care
Caregiver Support
Hospice and Palliative Care
Geriatric Care Managers
Medical and Health Information
Adult Day Care Centers
Home Modifications

 

How to Find a Caregiver

ProgramDescription and Link
Aging CareInteractive free search for senior care and services that match your needs
AgingCare.com
Home CareList of local caregivers provided after entering general information and providing email address
HomeCare.com
Home InsteadProvider of health care services, including hospice and dementia care for those living at home
HomeInstead.com
Alzheimer's AssociationAssociation provides community resources finder and programs, for help with Alzheimer’s disease and their families
Alz.org
Care SpotterSet up an account to get access to local experienced in-home caregivers
CareSpotter.com
Senior LivingTips on finding and hiring a caregiver
SeniorLiving.org
Care PathwaysTips on finding a private caregiver for your loved one
CarePathways.com
Wise CaregivingProcess in hiring the right in-home caregiver with sample caregiver job application form
WiseCaregiving.com
USA.govTips and resources to help you find emotional and task support
USA.gov
Senior AdviceThe screening process in hiring a home health care provider
SeniorAdvice.com
Senior ResourceGeneral information on a range of topics from financial planning, types of senior housing and care
SeniorResource.com
Human GoodSearch by locality and type of housing desired
HumanGood.org
Eldercare LocatorConnects older adults to community resources, health, housing options, assisted living using zip code
Eldercare.acl.gov
Graying with GraceInformation on finding a live-in caregiver for an elderly parent
GrayingwithGrace.com
Senior CaregiversFind in-home private caregiver and articles on paying for services
SeniorCaregivers.net

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Help with Talking to Parents: Questionnaire to Identify Areas of Need

ProgramDescription and Link
AARPVery useful categorization and checklists of General Needs Assessment and Goals
AARP.org
Harvard Medical SchoolFor purchase, information in report navigates the spectrum of tasks undertaken by caregivers; and information on navigating Medicare and Medicaid
Health.Harvard.edu
Real Simple Articles on opening a conversation with loved one along with questions to ask about health and finances
RealSimple.com
Caregiving.comPart of a series of articles describing what to expect throughout the caregiving journey
Caregiving.com
The Scan FoundationArticles from independent public charity on caring for older adults, including “10 Things You Should Know” series as well as video on pointers on planning aging
TheScanFoundataion.org

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Task management (Communication, Coordination, Organization)

ProgramDescription and Link
Caring BridgeUsers can create an online site that allows member of a caring community to share thoughts, schedule video calls
CaringBridge.org
Care ZoneDesigned to have friends and family plug in, share, and organize private information in the cloud, to-do lists, calendars; accessible on mobile apps
CareZone.com
Lots a Helping HandsCalendar events, sign-up sheet for tasks; communicate with family and friends
LotsaHelpingHands.com
Online CalendarsKeep track of appointments, reminders, schedules, etc. Google Calendar (requires a Google account), Sunrise,Yahoo Calendar, Apple’s iCal, Cozi Family
Online DocumentationNotes, track tasks, save important documents
Signup GeniusCustomized sign-up for posting to-do tasks
SignupGenius.com
MedicareFind and compare health & prescription drugs
Medicare.gov
Caring VillageMobile app for caregivers to create care plans, keep track of appointments, current meds
CaringVillage.com
Where You Live MattersFree downloadable guide on caring for your aging parents
WhereYouLiveMatters-TacklingtheTopic.pdf
ChartwellChecklist of question to ask aging parent on living arrangements, care considerations
Chartwell.com

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Medical Records Information and Storage

ProgramDescription and Link
HealthIT.govLaunched by the Office of the National Coordinator for Health information Technology , site provides information for health care professionals, patients and families on electronic medical records (EMRs)
HealthIT.gov
US Surgeon GeneralThe tool, “My Family Health Portrait” assembles family health history that can be shared with family or health practitioners
CDC.gov
US Health and Human ServicesPrivacy concerns re: medical records
HHS.gov
SympleFree app for Apple users to record symptoms and journal their feelings
SympleApp.com
MediSafeFree app to reminde users to take a medication
MediSafeApp.com

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Housing — Care Settings –Transitions Between Care Settings

ProgramDescription and Link
Eldercare LocatorA public service of US. Administration on Aging, it is a nationwide service linking community resources and facilities for older adults and their caregivers in the adult’s hometown; connects caregiver to local services
Eldercare.acl.gov
CaringFree directory of providers of assisted living, independent living, and other residential care options, with photos, reviews, cost information
Caring.com
LongTermCare.govFrom US. Department of Health and Human Services, spells out senior living options, legal considerations, and payment options
ACL.gov
A Place for MomComprehensive senior living options with search by zip code
APlaceforMom.com
Assisted LivingFree service that searches and compares senior living options
AssistedLiving.com
Senior HomesSenior articles addressing different care settings; free Care Advisory Service, and free directory of home care settings
SeniorHomes.com
National Long-Term Care OmbudsmanThis will direct you to a local ombudsman to help you find nursing homes, assisted living facilities, board and care homes; trained to resolve conflicts in a facility and assist with resident’s complaints
TheConsumerVoice.org
Department of Housing and Human DevelopmentInformation on financial assistance for low-income senior citizens
HUD.gov
Administration on AgingKey information on implementing care transition programs
ACL.gov
AARPCompare costs of nursing home care, adult day care, in-home care, assisted living in your area or two areas
AARP.org
MedicareGuide provides information about housing options, paying for care, and checklist for comparing Medicare- certified nursing homes and home health agencies
Medicare.gov
Assisted Living Federation of AmericaNational association has large amount of information on managed, resident-centered senior living communities
ALFAHousing.org
Leading AgeSearchable directory of services for aging seniors via zip code
LeadingAge.org
Assist Guide Information ServicesFree information on caregiving and caregiving solutions; also provides a list of providers and support services in a location of your choosing
AGIS.com
National Center for Assisted Living (NCAL)Consumer publications guiding consumer through decision making process in choosing and selecting an assisted living facility
AHCANCAL.org
National Institute on AgingHelpful guide on nursing homes and how to pay for a home
NIA.NIH.gov
Assisted Living CenterHas a directory of assisted living facilities and stats in states and major cities as well as articles focusing on common issues of assisted living residents
AssistedLivingCenter.com
Assisted Living DirectoryDirectory listing of facilities in states and major cities
AssistedLivingDIrectory.com
Next Step in CareSite provides advice, guides, checklists for family caregivers to make smooth and safe transitions between care settings (i.e., hospitals, rehab, nursing homes and home)
NextStepinCare.org
National Association of Area Agencies on AgingSingle point of entry into long-term care services for older adults
N4A.org
Care LinxFree search after entering contact information to find in-home caregiver to match your needs
CareLinx.com
Veterans AdministrationInformation from the Veterans Administration on various senior settings for long term care and payment options
VA.gov
The Aging NetworkHeaded by the Administration on Aging, the National Aging Network promotes the development of comprehensive and coordinated systems of home and community-based services (HCBS), responsive to the needs and preferences of older people and their family caregivers.
Eldercare.acl.gov

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For Help In Paying Bills, Health Costs, Long-Term Care

Program Description
The National Council on Aging Free service that helps older people to find benefit programs that help pay for medications, health care, financial, legal, utility bills, in-home services, and food

https://www.benefitscheckup.org/

PACE (Program for All-Inclusive Care for the Elderly Medicare program and Medicaid state option that provides community-based care and services who otherwise would need a nursing home level of care. It offers a full range of health care services from prescription drugs, doctor care, transportation, home care, checkups, hospital visits, and nursing home stays when necessary, adult day care services, meals, physical therapy, dentistry, social work consulting, and laboratory and X-ray services

http://www.medicare.gov/your-medicare-costs/help-paying-costs/pace/pace.html

Medicare Explanation of various programs that can help you save on drug and medical expenses

http://medicare.gov/your-medicare-costs/help-paying-costs/get-help-paying-costs.html

NeedyMeds List programs that provide assistance to those who cannot afford drugs or health care costs; you apply directly to those programs

http://www.needymeds.org/newuser

Benefits Checkup Provided as a free service by the National Council on Aging, site provides comprehensive search to find public and private benefit and prescription drug programs to help seniors cover some costs of care expenses

https://www.benefitscheckup.org/

Paying for Senior Care Information on how families can pay for at-home care, assisted living, nursing home, and Alzheimer’s care

http://www.payingforseniorcare.com/

Veterans Administration Information from the Veterans Administration on paying for long term care services

http://www.va.gov/geriatrics/guide/longtermcare/Paying_for_Long_Term_Care.asp

NIH Senior Care Article covering the various ways to pay, plus a link to the long term care costs in your state

http://nihseniorhealth.gov/longtermcare/payingforlongtermcare/01.html

Longtermcare.gov Very helpful articles on costs as well as map on the cost details in your state depending on type of service (nursing home, in-home, assisted living)

http://longtermcare.gov/costs-how-to-pay/costs-of-care-in-your-state/

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Caregiver Support

Program Description
AARP Its Caregiving Resource Center provides guides and checklists as well as in personal support
http://www.aarp.org/home-family/caregiving/
National Respite Locator Helps caregivers find respite services in their area to match their specific needs

http://archrespite.org/respitelocator

A Place for Mom Browse available services by region or by state

http://www.aplaceformom.com/respite-care

HelpGuide.org Several articles on tips for relieving stress and burnout for caregivers

http://helpguide.org/articles/stress/caregiving-stress-and-burnout.htm

Family Caregiving Alliance Helpful articles on national, state and local programs that support caregivers

https://caregiver.org/taking-care-you-self-care-family-caregivers

Aging Parents and Elder Care Support group message board for caregivers to share experiences and thoughts

http://www.aging-parents-and-elder-care.com/Pages/SupportGroup.html

LeadingAge Searchable directory for respite care in your specific community

http://www.leadingage.org/FindMember.aspx

AssistGuide for Information Services (AGIS) Handy general checklist for finding a support group

http://www.agis.com/Document/24/tips-for-finding-a-support-group.aspx

National Institute on Aging (NIH) Helpful booklet in question-and-answer format for caregivers who live far away from their parents

https://www.nia.nih.gov/health/publication/so-far-away-twenty-questions-and-answers-about-long-distance-caregiving

Shepherd’s Centers of America Interfaith, nonprofit organization that provides a variety of services , such as support, meals, nursing visitors, in-home visitors, transportation; services vary within the centers

http://shepherdcenters.org/scamembercenterslistall.asp

HelpGuide.org Excellent source of tips for making family caregiving easier

http://www.helpguide.org/articles/caregiving/caregiving-support-and-help.htm

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Hospice and Palliative Care

Program Description
Washington Post Detailed information on hospices in each state and what information is important for consumers to know, such as age, size, accreditation, inspections, life-patient discharge rate and how it compares to others

http://www.washingtonpost.com/wp-srv/special/business/hospice-quality

CaringInfo A program from the National Hospice and Palliative Care Organization, this national organization provides articles on finding, selecting and paying hospice services and improving end-of-life-care

http://www.caringinfo.org/

National Association for Home Care & Hospice Connects you with local home care and hospice services in your community

http://www.nahcagencylocator.com/

Medicare Discusses coverage for hospice care

http://www.medicare.gov/coverage/hospice-and-respite-care.html

National Hospice and Palliative Care Organization Information on hospice care

http://www.nhpco.org/resources

National Institute on Aging (NIH) 68-page guide discussing key issues at the end of life

https://www.nia.nih.gov/health/publication/end-life-helping-comfort-and-care/introduction

HospiceDirectory.org Searchable directory of hospices by city and state and offers information on options on paying for hospice care

http://www.hospicedirectory.org/

Moments of Life Group provides information on hospice services, includes stories and a directory of hospices closest to your location

http://www.momentsoflife.org/

Hospice Foundation of America (HFA) Nonprofit offers information on hospice and end-of-life issues and includes an Ask an Expert feature to ask personalized questions

http://hospicefoundation.org/

Get Palliative Care A site that specializes in palliative care information; contains directory of hospitals providing palliative care services; provides questionnaire on whether palliative care is appropriate

http://getpalliativecare.org/

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Geriatric Care Managers

Program Description
Institute on Aging Care managers screen and monitor care plans as well as make any periodic needed adjustments

http://www.ioaging.org/services-for-elders-and-caregivers/care-management

Aging Life Care Associations Formerly National Associate of Professional Geriatric Care Manager; association assists you in finding aging life care professionals in your community

http://www.aginglifecare.org/

National Care Planning Council Click on a map to find a geriatric care manager in your state

https://www.longtermcarelink.net/a2bfindmanager.htm

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Medical and Health Information

Program Description Contact
Medline Plus From US National Library of Medicine and NIH, government site offering generous amounts of health information

http://www.nlm.nih.gov/medlineplus/

FDA Searchable catalog of FDA approved human drugs, prescriptions and over the counter, interactions, drug recalls, vaccines, medical devices, dosages

http://www.fda.gov/Drugs/default.htm

National Library of Medicine Known as the world’s largest medical library; in addition to articles, watch health videos on anatomy and body systems and how diseases and conditions affect them

http://www.nlm.nih.gov/

Mayo Clinic Covers symptoms, tests, supplements, and treatments for diseases selected in an A-Z listing

http://www.mayoclinic.org/patient-care-and-health-information

U.S. Health and Human Services, Aging site Site devoted to healthy aging and offers one source links to government resources, information on health issues, long term care, and retirement planning

http://www.hhs.gov/aging

Mental Health America A-Z listing of mental health information

http://www.mentalhealthamerica.net/mental-health-information

National Institute on Aging (NIH) A-Z health topics with information on a variety of senior issues

https://www.nia.nih.gov/health/topics

NIH Senior Health Health and wellness information and videos from National Institute on Aging

http://Nihseniorhealth.gov

HealthFinder Sponsored by the U.S. Department of Health and Human Services, provides easy to understand health information and advice; provides personalized health recommendations through myhealthfinder

http://healthfinder.gov/

MedHelp Online health community offers an A-Z listing on drugs and health conditions; supports community forum as well as an Ask a Doctor segment; has handy health trackers

http://www.medhelp.org/

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Adult Day Care Centers

Program Description
National Adult Day Services Assoc. Locate adult day centers via zip code; features a handy checklist to use on visits to a day care center

http://nadsa.org/consumers/choosing-a-center/

Administration on Aging Helpful factsheets an adult day care center, how to pay for such services, as well as search feature for local centers in your area

http://www.eldercare.gov/Eldercare.NET/Public/Resources/Factsheets/Adult_Day_Care.aspx and http://www.eldercare.gov/Eldercare.NET/Public/Index.aspx

Caring.com Find an adult day care center by zip or city and state; articles on how to pay and what services are offered

https://www.caring.com/local/adult-day-care?PageSpeed=noscript

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Home Modifications

Program Description
National Association of Home Builders Directory of certified aging in place specialists who provide home modifications to increase access and safety for the aging

http://www.nahb.org/en/consumers/homeownership/aging-in-place-vs-universal-design/aging-in-place-remodeling.aspx

Consumer Product Safety Commission Handy checklist to spot safety problems in older parent’s home

https://www.cpsc.gov/PageFiles/122038/701.pdf

Homemods Nonprofit with national database of home modification and repair providers who do work for the elderly

http://homemods.org/directory/index.shtml

Eldercare Locator A public service of U.S. Administration on Aging offers a factsheet on home modifications

http://www.eldercare.gov/Eldercare.NET/Public/Resources/Factsheets/Home_Modifications.aspx

Paying for Senior Care Database of financial resources to help pay for home safety and accessibility modifications

http://www.payingforseniorcare.com/longtermcare/resources/locator_tool.html

This Caring Home From the Weill Cornell Medical College, the site offers tips and tools for home safety for dementia individuals, and how to make life safer; has Expert Reviews on a variety of specialized products for each room

http://www.thiscaringhome.org/

 

* Senior Care Advice does not endorse any of these organizations and companies, nor does it qualify any of the services or products listed below. Your use of third-party websites, including those listed above, is at your own risk.

 

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