Resources for Family Caregivers

Published In Caregiver Support

The following list of organizations and companies is provided for informational purposes only. This directory is not comprehensive, but it does include some excellent resources to help you jumpstart your research. While visiting these websites, be aware that some are reputable government sites; others are commercial businesses that may request you fill out a form to get more information or to talk to a representative; others contain sponsored content to cater to advertisers; and still others may sell personal information to advertisers.* So, please exercise caution about what personal information you give out.

How to Find a Caregiver
Help with Talking to Parents: Questionnaire to Identify Areas of Need
Task Management (Communication, Coordination, Organization)
Medical Records Information and Storage
Housing—Care Settings—Transitions Between Care Settings
Help with Paying Bills, Health Costs, Long-Term Care
Caregiver Support
Hospice and Palliative Care
Geriatric Care Managers
Medical and Health Information
Adult Day Care Centers
Home Modifications


How to Find a Caregiver

ProgramDescription and Link
Aging CareInteractive free search for senior care and services that match your needs
Home CareList of local caregivers provided after entering general information and providing email address
Home InsteadProvider of health care services, including hospice and dementia care for those living at home
Alzheimer's AssociationAssociation provides community resources finder and programs, for help with Alzheimer’s disease and their families
Care SpotterSet up an account to get access to local experienced in-home caregivers
Senior LivingTips on finding and hiring a caregiver
Care PathwaysTips on finding a private caregiver for your loved one
Wise CaregivingProcess in hiring the right in-home caregiver with sample caregiver job application form
USA.govTips and resources to help you find emotional and task support
Senior AdviceThe screening process in hiring a home health care provider
Senior ResourceGeneral information on a range of topics from financial planning, types of senior housing and care
Human GoodSearch by locality and type of housing desired
Eldercare LocatorConnects older adults to community resources, health, housing options, assisted living using zip code
Graying with GraceInformation on finding a live-in caregiver for an elderly parent
Senior CaregiversFind in-home private caregiver and articles on paying for services


Help with Talking to Parents: Questionnaire to Identify Areas of Need

ProgramDescription and Link
AARPVery useful categorization and checklists of General Needs Assessment and Goals
Harvard Medical SchoolFor purchase, information in report navigates the spectrum of tasks undertaken by caregivers; and information on navigating Medicare and Medicaid
Real Simple Articles on opening a conversation with loved one along with questions to ask about health and finances
Caregiving.comPart of a series of articles describing what to expect throughout the caregiving journey
The Scan FoundationArticles from independent public charity on caring for older adults, including “10 Things You Should Know” series as well as video on pointers on planning aging


Task management (Communication, Coordination, Organization)

ProgramDescription and Link
Caring BridgeUsers can create an online site that allows member of a caring community to share thoughts, schedule video calls
Care ZoneDesigned to have friends and family plug in, share, and organize private information in the cloud, to-do lists, calendars; accessible on mobile apps
Lots a Helping HandsCalendar events, sign-up sheet for tasks; communicate with family and friends
Online CalendarsKeep track of appointments, reminders, schedules, etc. Google Calendar (requires a Google account), Sunrise,Yahoo Calendar, Apple’s iCal, Cozi Family
Online DocumentationNotes, track tasks, save important documents
Signup GeniusCustomized sign-up for posting to-do tasks
MedicareFind and compare health & prescription drugs
Caring VillageMobile app for caregivers to create care plans, keep track of appointments, current meds
Where You Live MattersFree downloadable guide on caring for your aging parents
ChartwellChecklist of question to ask aging parent on living arrangements, care considerations


Medical Records Information and Storage

ProgramDescription and Link
HealthIT.govLaunched by the Office of the National Coordinator for Health information Technology , site provides information for health care professionals, patients and families on electronic medical records (EMRs)
US Surgeon GeneralThe tool, “My Family Health Portrait” assembles family health history that can be shared with family or health practitioners
US Health and Human ServicesPrivacy concerns re: medical records
SympleFree app for Apple users to record symptoms and journal their feelings
MediSafeFree app to reminde users to take a medication


Housing — Care Settings –Transitions Between Care Settings

ProgramDescription and Link
Eldercare LocatorA public service of US. Administration on Aging, it is a nationwide service linking community resources and facilities for older adults and their caregivers in the adult’s hometown; connects caregiver to local services
CaringFree directory of providers of assisted living, independent living, and other residential care options, with photos, reviews, cost information
LongTermCare.govFrom US. Department of Health and Human Services, spells out senior living options, legal considerations, and payment options
A Place for MomComprehensive senior living options with search by zip code
Assisted LivingFree service that searches and compares senior living options
Senior HomesSenior articles addressing different care settings; free Care Advisory Service, and free directory of home care settings
National Long-Term Care OmbudsmanThis will direct you to a local ombudsman to help you find nursing homes, assisted living facilities, board and care homes; trained to resolve conflicts in a facility and assist with resident’s complaints
Department of Housing and Human DevelopmentInformation on financial assistance for low-income senior citizens
Administration on AgingKey information on implementing care transition programs
AARPCompare costs of nursing home care, adult day care, in-home care, assisted living in your area or two areas
MedicareGuide provides information about housing options, paying for care, and checklist for comparing Medicare- certified nursing homes and home health agencies
Assisted Living Federation of AmericaNational association has large amount of information on managed, resident-centered senior living communities
Leading AgeSearchable directory of services for aging seniors via zip code
Assist Guide Information ServicesFree information on caregiving and caregiving solutions; also provides a list of providers and support services in a location of your choosing
National Center for Assisted Living (NCAL)Consumer publications guiding consumer through decision making process in choosing and selecting an assisted living facility
National Institute on AgingHelpful guide on nursing homes and how to pay for a home
Assisted Living CenterHas a directory of assisted living facilities and stats in states and major cities as well as articles focusing on common issues of assisted living residents
Assisted Living DirectoryDirectory listing of facilities in states and major cities
Next Step in CareSite provides advice, guides, checklists for family caregivers to make smooth and safe transitions between care settings (i.e., hospitals, rehab, nursing homes and home)
National Association of Area Agencies on AgingSingle point of entry into long-term care services for older adults
Care LinxFree search after entering contact information to find in-home caregiver to match your needs
Veterans AdministrationInformation from the Veterans Administration on various senior settings for long term care and payment options
The Aging NetworkHeaded by the Administration on Aging, the National Aging Network promotes the development of comprehensive and coordinated systems of home and community-based services (HCBS), responsive to the needs and preferences of older people and their family caregivers.


For Help In Paying Bills, Health Costs, Long-Term Care

ProgramDescription and Link
The National Council on AgingFree service that helps older people to find benefit programs that help pay for medications, health care, financial, legal, utility bills, in-home services, and food
PACE(Program for All-Inclusive Care for the Elderly)Medicare program and Medicaid state option that provides community-based care and services who otherwise would need a nursing home level of care. It offers a full range of health care services from prescription drugs, doctor care, transportation, home care, checkups, hospital visits, and nursing home stays when necessary, adult day care services, meals, physical therapy, dentistry, social work consulting, and laboratory and X-ray services
MedicareExplanation of various programs that can help you save on drug and medical expenses
Needy MedsList programs that provide assistance to those who cannot afford drugs or health care costs; you apply directly to those programs
Benefits CheckupProvided as a free service by the National Council on Aging, site provides comprehensive search to find public and private benefit and prescription drug programs to help seniors cover some costs of care expenses
Paying for Senior CareInformation on how families can pay for at-home care, assisted living, nursing home, and Alzheimer’s care
Veterans AdministrationInformation from the Veterans Administration on paying for long term care services
NIH Senior CareArticle covering the various ways to pay, plus a link to the long term care costs in your state
Longterm CareVery helpful articles on costs as well as map on the cost details in your state depending on type of service (nursing home, in-home, assisted living)
AARPHelpful calculator on costs comparison by your geographic area
American Council on AgingInformative site for prospective applicants to learn how to qualify for Medicaid long-term care
Money GeekInformative article on financing costs of long-term care


Caregiver Support

Program Description and Link
AARP Its Caregiving Resource Center provides guides and checklists as well as in personal support
National Respite LocatorHelps caregivers find respite services in their area to match their specific needs
Respite Locator
A Place for MomBrowse available services by region or by state
Help GuideSeveral articles on tips for relieving stress and burnout for caregivers
Family Caregiving AllianceHelpful articles on national, state and local programs that support caregivers
Assist Guide for Leading Services (AGIS)Handy general checklist for finding a support group
National Institute on AgingHelpful booklet in question-and-answer format for caregivers who live far away from their parents
Shepard's Centers of AmericaInterfaith, nonprofit organization that provides a variety of services , such as support, meals, nursing visitors, in-home visitors, transportation; services vary within the centers
Help GuideExcellent source of tips for making family caregiving easier
Aging CareOn home page assistance in finding caregivers in your community and provides forum to submit questions
Aging Care


Hospice and Palliative Care

Program Description and Link
Washington PostDetailed information on hospices in each state and what information is important for consumers to know, such as age, size, accreditation, inspections, life-patient discharge rate and how it compares to others
Hospice Quality Article
Caring InfoA program from the National Hospice and Palliative Care Organization, this national organization provides articles on finding, selecting and paying hospice services and improving end-of-life-care
National Association for Home Care and HospiceConnects you with local home care and hospice services in your community
MedicareDiscusses coverage for hospice care
National Hospice and Palliative Care OrganizationInformation on hospice care
National Institute on Aging76-page guide discussing key issues at the end of life
Hospice Foundation of America (HFA)Nonprofit offers information on hospice and end-of-life issues and includes an Ask an Expert feature to ask personalized questions
Get Palliative CareA site that specializes in palliative care information; contains directory of hospitals providing palliative care services; provides questionnaire on whether palliative care is appropriate


Geriatric Care Managers

Program Description and Link
Institute on AgingCare managers screen and monitor care plans as well as make any periodic needed adjustments
Aging Life Care AssociationsFormerly National Associate of Professional Geriatric Care Manager; association assists you in finding aging life care professionals in your community
National Care Planning CouncilClick on a map to find a geriatric care manager in your state


Medical and Health Information

Program Description and Link
Medline PlusFrom US National Library of Medicine and NIH, government site offering generous amounts of health information
FDASearchable catalog of FDA approved human drugs, prescriptions and over the counter, interactions, drug recalls, vaccines, medical devices, dosages
National Library of MedicineKnown as the world’s largest medical library; in addition to articles, watch health videos on anatomy and body systems and how diseases and conditions affect them
Mayo ClinicCovers symptoms, tests, supplements, and treatments for diseases selected in an A-Z listing
US Health and Human Services, Aging SiteSite devoted to healthy aging and offers one source links to government resources, information on health issues, long term care, and retirement planning
Mental Health AmericaA-Z listing of mental health information
National Institute on Aging (NIH)A-Z health topics with information on a variety of senior issues
NIH Senior HealthHealth and wellness information and videos from National Institute on Aging
Health FinderSponsored by the U.S. Department of Health and Human Services, provides easy to understand health information and advice; provides personalized health recommendations through myhealthfinder
Med HelpOnline health community offers an A-Z listing on drugs and health conditions; supports community forum as well as an Ask a Doctor segment; has handy health trackers


Adult Day Care Centers

Program Description and Link
National Adult Day Services AssociationLocate adult day centers via zip code; features a handy checklist to use on visits to a day care center
Administration on AgingHelpful factsheets an adult day care center, how to pay for such services, as well as search feature for local centers in your area
Local Resources
CaringFind an adult day care center by zip or city and state; articles on how to pay and what services are offered


Home Modifications

Program Description and Link
National Association of Home BuildersDirectory of certified aging in place specialists who provide home modifications to increase access and safety for the aging
Consumer Product Safety Commission Handy checklist to spot safety problems in older parent’s home
HomemodsNonprofit with national database of home modification and repair providers who do work for the elderly
Eldercare LocatorA public service of U.S. Administration on Aging offers a factsheet on home modifications
Home Modification Factsheet
Paying for Senior CareDatabase of financial resources to help pay for home safety and accessibility modifications
This Caring HomeFrom the Weill Cornell Medical College, the site offers tips and tools for home safety for dementia individuals, and how to make life safer; has Expert Reviews on a variety of specialized products for each room
Rural Housing Service in the USDA AgencyLoans and grants to very low-income homeowners to repair, improve, or modernize their home or to remove health and safety hazards.
Single Family Homes Loans and Grants
Rural Housing Repair Loans
Rebuilding TogetherNonprofit that provides home modifications repairs for qualified seniors in selected regions of the country via volunteers
Rebuilding Together


* Senior Care Advice does not endorse any of these organizations and companies, nor does it qualify any of the services or products listed below. Your use of third-party websites, including those listed above, is at your own risk.


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