Resources for Family Caregivers

Published In Caregiver Support

September 14th, 2015

The following list of organizations and companies is provided for informational purposes only. This directory is not comprehensive, but it does include some excellent resources to help you jumpstart your research. While visiting these websites, be aware that some are reputable government sites; others are commercial businesses that may request you fill out a form to get more information or to talk to a representative; others contain sponsored content to cater to advertisers; and still others may sell personal information to advertisers.* So, please exercise caution about what personal information you give out.

How to Find a Caregiver
Help with Talking to Parents: Questionnaire to Identify Areas of Need
Task Management (Communication, Coordination, Organization)
Medical Records Information and Storage
Housing—Care Settings—Transitions Between Care Settings
Help with Paying Bills, Health Costs, Long-Term Care
Caregiver Support
Hospice and Palliative Care
Geriatric Care Managers
Medical and Health Information
Adult Day Care Centers
Home Modifications

 

How to Find a Caregiver

Program Description
Caregiver.com Listing of local caregivers by location or type of service needed

http://resources.caregiver.com

HomeCare List of local caregivers provided after entering general information and providing email address

http://homecare.com

Home Instead Provider of health care services, including hospice and dementia care for those living at home

https://www.homeinstead.com/

Alzheimer’s Association Association provides community resources finder and programs, for help with Alzheimer’s disease and their families

http://www.alz.org/care/alzheimers-dementia-care-housing.asp

AssistGuide for Information Services (AGIS) Suggestions on how to find a caregiver

http://www.agis.com/Document/19/resources-for-finding-a-caregiver.aspx

Care4Hire Register and you have access to listings of caregivers who meet your specific needs and requirements

http://www.care4hire.com/

CareSpotter Set up an account to get access to local experienced in-home caregivers

https://www.carespotter.com/

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Help with Talking to Parents: Questionnaire to Identify Areas of Need

Program Description
AARP Very useful categorization and checklists of General Needs Assessment and Goals

http://www.aarp.org/content/dam/aarp/home-and-family/caregiving/2012-10/prepare-to-care-lores.pdf

Harvard Medical School For purchase, information in report navigates the spectrum of tasks undertaken by caregivers; also includes a needs questionnaire; and information on navigating Medicare and Medicaid

http://www.health.harvard.edu/aging/caregivers-handbook

Real Simple Articles on opening a conversation with loved one along with questions to ask about health and finances

http://www.realsimple.com/health/preventative-health/aging-caregiving/essential-questions-for-aging-parents;

http://www.realsimple.com/health/preventative-health/aging-caregiving/talk-parents-aging

AgingPro Caregiving 101, good overview of caring for the elderly

http://agingpro.com/articles/article.php?id=6#anchor20

AssistGuide Information Services (Agis) Lots of information and local resources on family caregivers plus handy checklists

http://www.agis.com/eldercare-checklist/default.aspx

CareGiving.com Part of a series of articles describing what to expect throughout the caregiving journey

http://www.caregiving.com/the-caregiving-years/stage-1-the-expectant-caregiver/

The Scan Foundation Articles from independent public charity on caring for older adults, including “10 Things You Should Know” series as well as video on pointers on planning aging

http://www.thescanfoundation.org/10-conversations-plan-aging-dignity-and-independence

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Task management (Communication, Coordination, Organization)

Program Description
CaringBridge Create free website, share news, photos, messages
http://www.caringbridge.org/
CareZone Designed to have friends and family plug in, share, and organize private information in the cloud, to-do lists, calendars; accessible on mobile apps

https://carezone.com/home.

Lotsof Helping Hands Calendar events, sign-up sheet for tasks; communicate with family and friends
http://lotsahelpinghands.com/
Unfrazzle Downloadable app on iPhone and Android to help manage schedules and daily caregiving tasks

http://unfrazzledcare.com/unfrazzle-app/

AboutOne Both web and mobile version, includes family calendar, tracks notes, photos, documents

http://www.aboutone.com/apps

Online calendars Keep track of appointments, reminders, schedules, etc. Google Calendar (requires a Google account), Sunrise,Yahoo Calendar, Apple’s iCal, Cozi Family
Online documentation Notes, track tasks, save important documents

Dropbox, JustCloud, SugarSync, OnlineFileFolder, Evernote

SignUpGenius Customized sign-up for posting to-do tasks

http://www.signupgenius.com/

CareGiver Action Network Suggestions on categorizing patient’s file

http://www.caregiveraction.com/patient-file-checklist

Medicare Find and compare health & prescription drugs

https://medicare.gov/find-a-plan/questions/home.aspx?

CareCentral A free service where family and friends can create a secure community to keep in touch, stay informed, and support

http://www.carecentral.com/

Carepages Creates private account for a free website to connect family and friends, relate stories, post pictures

https://www.carepages.com

Making Care Easier (MCE) Families can store and share personalized, secure information, coordinate care, share updates and messages

https://www.makingcareeasier.com/families

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Medical Records Information and Storage

Program Description
HealthIt.gov Launched by the Office of the National Coordinator for Health information Technology , site provides information for health care professionals, patients and families on electronic medical records (EMRs)

http://www.healthit.gov/patients-families/maintain-your-medical-record

myPHR Tool to collect, track and share health information

http://www.myphr.com/

Family Medical Manager Organize family’s medical records, including medications

http://www.familymedicalmanager.com

U.S. Surgeon General The tool, “My Family Health Portrait” assembles family health history that can be shared with family or health practitioners

https://familyhistory.hhs.gov/FHH/html/index.html

Zweena Health Offers a paid and free plan. Uploads and stores key medical records free, or can pay Co. to organize and digitize health records

http://zweenahealth.com

CareSync Free and upgraded paid service that collects all your medical records, medication tracking

http://www.caresync.com/

U.S. Health and Human Services, Office of Civil Rights Privacy concerns re: medical records

YouTube video: https://www.youtube.com/watch?v=SMUFa5amPKs

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Housing — Care Settings –Transitions Between Care Settings

 

Program Description
Eldercare Locator A public service of US. Administration on Aging, it is a nationwide service linking community resources and facilities for older adults and their caregivers in the adult’s hometown; connects caregiver to local services

http://www.eldercare.gov/Eldercare.NET/Public/Index.aspx

Caring Free directory of providers of assisted living, independent living, and other residential care options, with photos, reviews, cost information
https://www.caring.com
Longtermcare.gov From US. Department of Health and Human Services, spells out senior living options, legal considerations, and payment options

http://longtermcare.gov/

A Place for Mom Comprehensive senior living options with search by zip code
http://www.aplaceformom.com
Assistedliving.com Free service that searches and compares senior living options
http://www.assistedliving.com
Our Parents Searchable database of assisted living facilities, nursing homes, retirement community in your zip code; call or email to connect to a company representative

https://www.ourparents.com

Senior Homes Senior articles addressing different care settings; free Care Advisory Service, and free directory of home care settings

http://www.seniorhomes.com/

National Long-Term Care Ombudsman This will direct you to a local ombudsman to help you find nursing homes, assisted living facilities, board and care homes; trained to resolve conflicts in a facility and assist with resident’s complaints
http://theconsumervoice.org/get_help
Family Caregiver Alliance Family Care Navigator to find public and private programs, and services near your parent; also variety of topics on caring for an aging individual

https://www.caregiver.org/family-care-navigator

Village to Village Network Helps communities organize cooperatives in which residents help residents; provides interactive map to search for community in your state or city

http://vtvnetwork.org

Medicare Guide provides information about housing options, paying for care, and checklist for comparing Medicare- certified nursing homes and home health agencies

http://www.medicare.gov/Pubs/pdf/02174.pdf; https://www.medicare.gov/homehealthcompare/

Department of Housing and Urban Development Information on financial assistance for low-income senior citizens

https://portal.hud.gov/hudportal/HUD?src=/topics/information_for_senior_citizens

Administration on Aging Key information on implementing care transition programs

http://www.aoa.gov/AoA_programs/Tools_Resources/Care_Transitions.aspx

The Co-Housing Company Co-housing for seniors (50+) in a planned community setting

http://www.cohousingco.com/project-types/?cat=senior-housing

AARP Compare costs of nursing home care, adult day care, in-home care, assisted living in your area or two areas

http://www.aarp.org/relationships/caregiving-resource-center/LTCC/?cmp=RDRCT-LONG_MARC14_011

Assisted Living Federation of America National association has large amount of information on managed, resident-centered senior living communities

http://www.alfa.org/alfa/Consumer_Resources.asp

LeadingAge Searchable directory of services for aging seniors via zip code

http://www.leadingage.org/FindMember.aspx

AssistGuide Information Services (AGIS) Free information on caregiving and caregiving solutions; also provides a list of providers and support services in a location of your choosing http://www.agis.com/Find-Facilities-and-Services/default.aspx
Center for Excellence in Assisted Living State each state’s information about assisted living

http://www.theceal.org/assisted-living-resource-center/resources-for-the-assisted-living-consumer

National Center for Assisted Living (NCAL) Consumer publications guiding consumer through decision making process in choosing and selecting an assisted living facility

http://www.ahcancal.org/ncal/resources/Pages/ConsumerResources.aspx

National Institute on Aging (NIH) Helpful guide on nursing homes and how to pay for a home

https://www.nia.nih.gov/health/publication/nursing-homes

MedCottage Prefabricated, high-tech modular home with monitoring and safety features as alternative to nursing homes

http://www.medcottage.com/features.php

Assisted Living Center Has a directory of assisted living facilities and stats in states and major cities as well as articles focusing on common issues of assisted living residents

http://www.assistedlivingcenter.com/

Assisted Living Directory Directory listing of facilities in states and major cities

http://www.assisted-living-directory.com/

Consumer Consortium on Assisted Living (CCAL) Offers information on assisted living facilities and quality and care of residents

http://www.ccal.org/

Next Step in Care Site provides advice, guides, checklists for family caregivers to make smooth and safe transitions between care settings (i.e., hospitals, rehab, nursing homes and home)

http://www.nextstepincare.org/

National Association of Area Agencies on Aging Single point of entry into long-term care services for older adults

http://www.n4a.org/adrcs

CareLinx Free search after entering contact information to find in-home caregiver to match your needs

https://www.carelinx.com/find-care/

Our Parents Search for senior housing or call Care Advisor; articles and videos on major types of living options, how to choose the right facility

https://www.ourparents.com/

Veterans Administration Information from the Veterans Administration on various senior settings for long term care and payment options

http://www.va.gov/geriatrics/guide/longtermcare/Paying_for_Long_Term_Care.asp

HealthFinder.gov From the U.S. Health and Human Services, find care settings, hospitals, health professionals offering services and support for senior citizens

http://www.healthfinder.gov/FindServices/

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For Help In Paying Bills, Health Costs, Long-Term Care

Program Description
The National Council on Aging Free service that helps older people to find benefit programs that help pay for medications, health care, financial, legal, utility bills, in-home services, and food

https://www.benefitscheckup.org/

PACE (Program for All-Inclusive Care for the Elderly Medicare program and Medicaid state option that provides community-based care and services who otherwise would need a nursing home level of care. It offers a full range of health care services from prescription drugs, doctor care, transportation, home care, checkups, hospital visits, and nursing home stays when necessary, adult day care services, meals, physical therapy, dentistry, social work consulting, and laboratory and X-ray services

http://www.medicare.gov/your-medicare-costs/help-paying-costs/pace/pace.html

Medicare Explanation of various programs that can help you save on drug and medical expenses

http://medicare.gov/your-medicare-costs/help-paying-costs/get-help-paying-costs.html

NeedyMeds List programs that provide assistance to those who cannot afford drugs or health care costs; you apply directly to those programs

http://www.needymeds.org/newuser

Benefits Checkup Provided as a free service by the National Council on Aging, site provides comprehensive search to find public and private benefit and prescription drug programs to help seniors cover some costs of care expenses

https://www.benefitscheckup.org/

Paying for Senior Care Information on how families can pay for at-home care, assisted living, nursing home, and Alzheimer’s care

http://www.payingforseniorcare.com/

Veterans Administration Information from the Veterans Administration on paying for long term care services

http://www.va.gov/geriatrics/guide/longtermcare/Paying_for_Long_Term_Care.asp

NIH Senior Care Article covering the various ways to pay, plus a link to the long term care costs in your state

http://nihseniorhealth.gov/longtermcare/payingforlongtermcare/01.html

Longtermcare.gov Very helpful articles on costs as well as map on the cost details in your state depending on type of service (nursing home, in-home, assisted living)

http://longtermcare.gov/costs-how-to-pay/costs-of-care-in-your-state/

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Caregiver Support

Program Description
AARP Its Caregiving Resource Center provides guides and checklists as well as in personal support
http://www.aarp.org/home-family/caregiving/
National Respite Locator Helps caregivers find respite services in their area to match their specific needs

http://archrespite.org/respitelocator

A Place for Mom Browse available services by region or by state

http://www.aplaceformom.com/respite-care

HelpGuide.org Several articles on tips for relieving stress and burnout for caregivers

http://helpguide.org/articles/stress/caregiving-stress-and-burnout.htm

Family Caregiving Alliance Helpful articles on national, state and local programs that support caregivers

https://caregiver.org/taking-care-you-self-care-family-caregivers

Aging Parents and Elder Care Support group message board for caregivers to share experiences and thoughts

http://www.aging-parents-and-elder-care.com/Pages/SupportGroup.html

LeadingAge Searchable directory for respite care in your specific community

http://www.leadingage.org/FindMember.aspx

AssistGuide for Information Services (AGIS) Handy general checklist for finding a support group

http://www.agis.com/Document/24/tips-for-finding-a-support-group.aspx

National Institute on Aging (NIH) Helpful booklet in question-and-answer format for caregivers who live far away from their parents

https://www.nia.nih.gov/health/publication/so-far-away-twenty-questions-and-answers-about-long-distance-caregiving

Shepherd’s Centers of America Interfaith, nonprofit organization that provides a variety of services , such as support, meals, nursing visitors, in-home visitors, transportation; services vary within the centers

http://shepherdcenters.org/scamembercenterslistall.asp

HelpGuide.org Excellent source of tips for making family caregiving easier

http://www.helpguide.org/articles/caregiving/caregiving-support-and-help.htm

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Hospice and Palliative Care

Program Description
Washington Post Detailed information on hospices in each state and what information is important for consumers to know, such as age, size, accreditation, inspections, life-patient discharge rate and how it compares to others

http://www.washingtonpost.com/wp-srv/special/business/hospice-quality

CaringInfo A program from the National Hospice and Palliative Care Organization, this national organization provides articles on finding, selecting and paying hospice services and improving end-of-life-care

http://www.caringinfo.org/

National Association for Home Care & Hospice Connects you with local home care and hospice services in your community

http://www.nahcagencylocator.com/

Medicare Discusses coverage for hospice care

http://www.medicare.gov/coverage/hospice-and-respite-care.html

National Hospice and Palliative Care Organization Information on hospice care

http://www.nhpco.org/resources

National Institute on Aging (NIH) 68-page guide discussing key issues at the end of life

https://www.nia.nih.gov/health/publication/end-life-helping-comfort-and-care/introduction

HospiceDirectory.org Searchable directory of hospices by city and state and offers information on options on paying for hospice care

http://www.hospicedirectory.org/

Moments of Life Group provides information on hospice services, includes stories and a directory of hospices closest to your location

http://www.momentsoflife.org/

Hospice Foundation of America (HFA) Nonprofit offers information on hospice and end-of-life issues and includes an Ask an Expert feature to ask personalized questions

http://hospicefoundation.org/

Get Palliative Care A site that specializes in palliative care information; contains directory of hospitals providing palliative care services; provides questionnaire on whether palliative care is appropriate

http://getpalliativecare.org/

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Geriatric Care Managers

Program Description
Institute on Aging Care managers screen and monitor care plans as well as make any periodic needed adjustments

http://www.ioaging.org/services-for-elders-and-caregivers/care-management

Aging Life Care Associations Formerly National Associate of Professional Geriatric Care Manager; association assists you in finding aging life care professionals in your community

http://www.aginglifecare.org/

National Care Planning Council Click on a map to find a geriatric care manager in your state

https://www.longtermcarelink.net/a2bfindmanager.htm

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Medical and Health Information

Program Description Contact
Medline Plus From US National Library of Medicine and NIH, government site offering generous amounts of health information

http://www.nlm.nih.gov/medlineplus/

FDA Searchable catalog of FDA approved human drugs, prescriptions and over the counter, interactions, drug recalls, vaccines, medical devices, dosages

http://www.fda.gov/Drugs/default.htm

National Library of Medicine Known as the world’s largest medical library; in addition to articles, watch health videos on anatomy and body systems and how diseases and conditions affect them

http://www.nlm.nih.gov/

Mayo Clinic Covers symptoms, tests, supplements, and treatments for diseases selected in an A-Z listing

http://www.mayoclinic.org/patient-care-and-health-information

U.S. Health and Human Services, Aging site Site devoted to healthy aging and offers one source links to government resources, information on health issues, long term care, and retirement planning

http://www.hhs.gov/aging

Mental Health America A-Z listing of mental health information

http://www.mentalhealthamerica.net/mental-health-information

National Institute on Aging (NIH) A-Z health topics with information on a variety of senior issues

https://www.nia.nih.gov/health/topics

NIH Senior Health Health and wellness information and videos from National Institute on Aging

http://Nihseniorhealth.gov

HealthFinder Sponsored by the U.S. Department of Health and Human Services, provides easy to understand health information and advice; provides personalized health recommendations through myhealthfinder

http://healthfinder.gov/

MedHelp Online health community offers an A-Z listing on drugs and health conditions; supports community forum as well as an Ask a Doctor segment; has handy health trackers

http://www.medhelp.org/

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Adult Day Care Centers

Program Description
National Adult Day Services Assoc. Locate adult day centers via zip code; features a handy checklist to use on visits to a day care center

http://nadsa.org/consumers/choosing-a-center/

Administration on Aging Helpful factsheets an adult day care center, how to pay for such services, as well as search feature for local centers in your area

http://www.eldercare.gov/Eldercare.NET/Public/Resources/Factsheets/Adult_Day_Care.aspx and http://www.eldercare.gov/Eldercare.NET/Public/Index.aspx

Caring.com Find an adult day care center by zip or city and state; articles on how to pay and what services are offered

https://www.caring.com/local/adult-day-care?PageSpeed=noscript

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Home Modifications

Program Description
National Association of Home Builders Directory of certified aging in place specialists who provide home modifications to increase access and safety for the aging

http://www.nahb.org/en/consumers/homeownership/aging-in-place-vs-universal-design/aging-in-place-remodeling.aspx

Consumer Product Safety Commission Handy checklist to spot safety problems in older parent’s home

https://www.cpsc.gov/PageFiles/122038/701.pdf

Homemods Nonprofit with national database of home modification and repair providers who do work for the elderly

http://homemods.org/directory/index.shtml

Eldercare Locator A public service of U.S. Administration on Aging offers a factsheet on home modifications

http://www.eldercare.gov/Eldercare.NET/Public/Resources/Factsheets/Home_Modifications.aspx

Paying for Senior Care Database of financial resources to help pay for home safety and accessibility modifications

http://www.payingforseniorcare.com/longtermcare/resources/locator_tool.html

ThisCaringHome From the Weill Cornell Medical College, the site offers tips and tools for home safety for dementia individuals, and how to make life safer; has Expert Reviews on a variety of specialized products for each room

http://www.thiscaringhome.org/

 

* Senior Care Advice does not endorse any of these organizations and companies, nor does it qualify any of the services or products listed below. Your use of third-party websites, including those listed above, is at your own risk.

 

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